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Autism Vox

Archive for the ‘Living Arrangements’ Category

May 14th, 2008

Statements to the IACC (and what happened on Monday)

The Interagency Autism Coordinating Committee (IACC) coordinates research and efforts pertaining to autism spectrum disorder (ASD) within the Department of Health and Human Services (DHHS). The IACC met this past Monday, May 12 in Washington, D.C. I had attended the November 2007 meeting and learned a great deal and was hoping to attend this […]

By Kristina Chew, PhD -- 30 comments

May 7th, 2008

Supported Living Facility in NJ?

Herb Heflich, executive of 10 NJ properties for senior citizens, has a plan to create a supported living facility for autistic adults—”a group home without the stuffiness of an institution“—in central NJ:
Designed to give adults with autism around-the-clock care — ranging from physical and occupational therapy to “vocational rehabilitation” — the two-story building proposed by […]

By Kristina Chew, PhD -- 6 comments

May 6th, 2008

Symposium on Employment for ASD Adults

In yesterday’s Seattle Post-Intelligencer, journalist Paul Nyhan writes about parents as the “invisible casualties” when a child has autism. 4-year-old Sharky Munat’s mother, Lillie Addams, recalls when the police showed up because Sharky’s screams permeated the thin walls of their apartment. After her son was diagnosed with autism, Addams went through “depression, chest-seizing anxiety attacks, […]

By Kristina Chew, PhD -- 19 comments

May 3rd, 2008

Last Week’s Top Posts: Awareness Month Ends and an Award

Autism Awareness Month 2008 ended Wednesday; here in my state of New Jersey, Senator Robert Menendez marked the closing of the month by unveiling the Helpings HANDS for Autism Act. The act calls for the creation of “autism navigators” to assist families in figuring out services; training for law enforcement and other primary responders; and […]

By Kristina Chew, PhD -- 4 comments

May 2nd, 2008

Where Where Where?

That’s the question I keep seeming to run into among parents: Where to live to get the best possible services for an autistic child? Over at About.com, Lisa Jo Rudy asks where should families move for better autism resources and notes that “in the United States, autism resources vary radically from state to state, […]

By Kristina Chew, PhD -- 17 comments

April 28th, 2008

Helping HANDS for Autism Act

Below is the press release about the new autism legislation that New Jersey Senator Robert Menendez unveiled this morning in Weehawken, in Hudson County in northern New Jersey. The legislation has three parts: The creation of “autism navigators” to help families “navigate” their way through services, treatment options, and much more; the development and […]

By Kristina Chew, PhD -- 3 comments

April 23rd, 2008

Obama and Clinton, Autism and Disability

Right now (afternoon of April 23, Wednesday) over at Science Blogs there’s a number of posts about Barack Obama’s statement at a Monday rally in Pennsylvnia that evidence linking vaccines and autism was “inconclusive” and that further research is needed. (It’s also pointed out that Hillary Clinton has also embraced “anti-vaccination woo”.)
While the candidates’ views […]

By Kristina Chew, PhD -- 20 comments

April 17th, 2008

Sued: New Jersey’s Department of Human Services

The state of New Jersey’s Department of Human Services is being sued by a legal advocacy group, New Jersey Protection and Advocacy Inc., for violating the rights of over 8000 developmental disabled people who have been waiting (over a decade, in some cases) to move into government-supported community housing. The department has a waiting list […]

By Kristina Chew, PhD -- 22 comments

April 3rd, 2008

Not a Fairy Tale and Not a Tragedy: Autistic Adults

Writes Linda H. Davis in the Washington Post yesterday, April 2nd, World Autism Day:
While greater media attention on autism is certainly welcome, virtually all coverage of autism in recent years has focused on a cure or on the education of young autistic children. You would think that, like children in a fairy tale, autistic children […]

By Kristina Chew, PhD -- 10 comments

March 30th, 2008

The Bicoastal Boy: Where Will Charlie Live When He’s Older?

Brooklyn is to Manhattan as California’s East Bay (Oakland, Berkeley) is to San Francisco: Today’s New York Times draws these comparisons:
….there is a young, earnest population that is beating a path between artsy, gentrifying neighborhoods in Brooklyn and their counterparts in the Bay Area, especially East Oakland and the area south of Market Street in […]

By Kristina Chew, PhD -- 15 comments