Slow and Steady: The Treatment Question
I recently got a message about a local meeting of an autism organization that supports “immediate” alternative treatments for autistic children. I’m not able to attend the meeting and have been thinking about that word “immediate.”
It’s not hard to understand why a parent would want some way to stop a child from head-banging (as my son used to, and frequently), or to wish that getting a child to say that first word could happen at the snap of one’s fingers; that one day you would wake up and your child could seamlessly, smilingly, read sentence after sentence in a book or just join in and play with the other kids on the playground. It’s all too easy to understand why parents wish for a fast and effective treatment, a “magic pill” or “miracle machine” like “Quantum Biofeedback” that is said to use “electronic frequencies” to treat “autism, Parkinson’s, and just about everything in-between” (and with little regard for the validity of its scientific claims); why parents would hope for a treatment that would produce immediate results, and do more than reducing anxiety a little or increasing focusing a bit as traditional medications do, and that would not take days and weeks and months of careful planning, teaching, and evaluations to carry out before any results occurred.
People want to help their kids; there’s no denying that.
There’s an old saying that it takes as long to forget a language as it takes to learn it and sometimes it seems to me that the “treatments” that Charlie been “in” the longest—education, school—have been the most durable, with the longest-lasting effects. Charlie has learned that he’s the person who can figure out how to monitor his anxiety and ask for breaks or help; he’s learned that he can control himself and his feelings and that, while he can’t talk too well, he can communicate what he needs. Teaching him all this took a long time—and I don’t think he’s going to forget these skills any time soon.
Tags: alternative medicine, asd, asperger, autism, biofeedback, Education, forgetting, Language, Parenting, pdd-nos, schools, TreatmentRelated Stories
POSTED IN: Junk Science, Language, Treatment








2 opinions for Slow and Steady: The Treatment Question
Autismville
Feb 26, 2008 at 6:28 pm
There’s no such thing as a shortcut to any place worth going … or that’s what I continually tell myself when it comes to Jack’s progress.
The fantastic news is that in the last 6 months he has started EATING! Peanut butter sandwiches, turkey, blueberries, rasberries .. all sorts of things. This was accomplished through some very intensive 1:1 … Again, no shortcuts here.
Joanna
Mar 27, 2008 at 3:30 pm
The program we have been doing with our son has a kind of overarching statement: “remediation is a marathon not a sprint.” I have found this to be absolutely true in autism–but quite frankly it is also true in life. Most things worth anything are long-term things that require hard work and perseverance. Farther down the road, you look back and can’t believe how far you’ve come. We do regular videotaping of us and our son for this program and I happened to rewind too far and watch some of the beginning videos recently. WOW! How far he has come and how much I now take for granted! Perseverance and hard work do pay off.
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