May 11th, 2008
First, Happy Mother’s Day to every mother reading this and many more (my own included, of course)!
An essay by Robert Hughes in today’s Chicago Tribune is entitled What Autism Means to a Father and much of what he says strikes home with me as a parent. Hughes captures how a parent feels as he or […]
By Kristina Chew, PhD -- 46 comments
May 7th, 2008
Last fall, I wrote about our difficulties getting swimtime in for Charlie at our YMCA pool in the later afternoon/early evenings, the time when he’s most ready to go. Our YMCA has three pools, two of which seem to be perpetually in use for the swim teams’ practices, adult lap swimming, or lessons. The third […]
By Kristina Chew, PhD -- 14 comments
May 6th, 2008
It was about three years ago as Charlie was turning eight that I stopped carrying him. He was always big for his age and I developed a bit of a muscle in my left arm from holding him, balanced on my hip—-he weighs as much or more than me now and the babe-in-arms days are […]
By Kristina Chew, PhD -- 1 comment
May 5th, 2008
The risk of having an autistic child is doubled if a parent has schizophrenia or if a mother has psychiatric problems (depression, personality disorders), according to a study published in Pediatrics. From Reuters via WNED.org:
The study of families in Sweden with children born between 1977 and 2003 involved 1,227 children diagnosed with autism. They were […]
By Kristina Chew, PhD -- 36 comments
May 4th, 2008
Thinking about long-term housing and job needs for my son and also the matter of a special needs trust and a will and one has those moments of thinking (yes, ridiculously), pity one can’t live forever……..
Maybe you’d rather not know this, but you can take a Vitality Compass quiz over at Blue Zones to find […]
By Kristina Chew, PhD -- 3 comments
May 2nd, 2008
What gets “disclosed” and what does not was the issue at the center of the recently released document concerning Hannah Poling. I have “disclosure” and “transparency” of a slightly different sort on my mind right now. Charlie’s IEP meeting is today and, amid reading over documents and evaluations and forms, reading up on IDEA at […]
By Kristina Chew, PhD -- 9 comments
April 29th, 2008
Nuala Gardner’s son Dale was born in 1988 and diagnosed with autism. In an essay in yesterday’s Guardian entitled The day I could no longer cope with my autistic son, she writes about how she contemplated suicide when her son was three years old but did not:
At the time I felt incredibly guilty about how […]
By Kristina Chew, PhD -- 4 comments
April 28th, 2008
I was interviewed in the May issue of Working Mother magazine in an article by Jennifer Owens entitled The Quiet Struggle: From heartbreak to hope: moms of kids with special needs. The mothers in the article have special needs kids of varying diagnoses (some with autism) and ages (3 years old; adults). One mother […]
By Kristina Chew, PhD -- 24 comments
April 22nd, 2008
“And then the guilt starts again because I have brain-eating blood that attacked Hayden.”
So says Dee Cogdill of Benton, Ohio in the April 21st Cleveland Banner; Hayden is 11 years old and autistic. Cogdill and her husband, Ed, took Hayden to Johns Hopkins University to participate in a research study about maternal antibodies (more about […]
By Kristina Chew, PhD -- 17 comments
April 20th, 2008
Laurie Duddy’s 8 year old twins, Tommy and Alex, both have severe autism. She—and a number of other parents of autistic children—are now studying for a master’s degree in Applied Behavior Analysis at Caldwell College in northern New Jersey. Today’s New York Times profiles the program and some of the parents who are studying […]
By Kristina Chew, PhD -- 25 comments
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