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Autism Vox

May 2nd, 2008

IEP Prep and More on Disclosure

What gets “disclosed” and what does not was the issue at the center of the recently released document concerning Hannah Poling. I have “disclosure” and “transparency” of a slightly different sort on my mind right now. Charlie’s IEP meeting is today and, amid reading over documents and evaluations and forms, reading up on IDEA at […]

By Kristina Chew, PhD -- 10 comments

April 29th, 2008

The Help Is There

Nuala Gardner’s son Dale was born in 1988 and diagnosed with autism. In an essay in yesterday’s Guardian entitled The day I could no longer cope with my autistic son, she writes about how she contemplated suicide when her son was three years old but did not:
At the time I felt incredibly guilty about how […]

By Kristina Chew, PhD -- 4 comments

April 28th, 2008

Working Mother

I was interviewed in the May issue of Working Mother magazine in an article by Jennifer Owens entitled The Quiet Struggle: From heartbreak to hope: moms of kids with special needs. The mothers in the article have special needs kids of varying diagnoses (some with autism) and ages (3 years old; adults). One mother […]

By Kristina Chew, PhD -- 27 comments

April 22nd, 2008

Mother Guilt Returns

“And then the guilt starts again because I have brain-eating blood that attacked Hayden.”
So says Dee Cogdill of Benton, Ohio in the April 21st Cleveland Banner; Hayden is 11 years old and autistic. Cogdill and her husband, Ed, took Hayden to Johns Hopkins University to participate in a research study about maternal antibodies (more about […]

By Kristina Chew, PhD -- 17 comments

April 20th, 2008

Parents Going Back to School

Laurie Duddy’s 8 year old twins, Tommy and Alex, both have severe autism. She—and a number of other parents of autistic children—are now studying for a master’s degree in Applied Behavior Analysis at Caldwell College in northern New Jersey. Today’s New York Times profiles the program and some of the parents who are studying […]

By Kristina Chew, PhD -- 25 comments

April 18th, 2008

A Future With Autism

There’s a video out on the web now called Autism Yesterday, echoing the title of another video that appeared in 2006, Autism Every Day. The latter video by director Lauren Thierry strove to present “what it’s like” for families to live with a child for autism. The other video, “Autism Yesterday,” presents the message that […]

By Kristina Chew, PhD -- 6 comments

April 14th, 2008

Love Stories in Autistic License

I really think of this piece as a love story between a husband and wife, between a mother and a son and between a father and a son.”
Says playwright Stacey Dinner-Levin of her play, Autistic License, which will be performed April 25 and 26 at the Illusion Theater in Minneapolis. More from Dinner-Levin (who has […]

By Kristina Chew, PhD -- 5 comments

April 12th, 2008

A Conversation

Scene: Charlie and I are sitting in the black car waiting for Jim who has run into a 7-11 for sodas. We have just had our usual Friday night dinner at Charlie’s favorite hamburger stand.
Charlie: Red slide!
Me: Where’s that?
Charlie: Red slide.
Me: Inside or outside?
Charlie: Inside.
Me (getting an inkling of where this might be going): Is […]

By Kristina Chew, PhD -- 14 comments

April 10th, 2008

Share and Share Alike

With a “Mom,” Charlie summoned me to sit beside him at the kitchen table last night. He was eating a pack of salmon and California roll sushi and when I sat down, he handed me a piece. “Give Mom!”
I assured him, thank you, but I didn’t want to take away from his dinner.
“Give Mom sushi,” […]

By Kristina Chew, PhD -- 13 comments

April 10th, 2008

Excluded

Parents of eight autistic children in Lakewood, Colorado, are objecting to where a classroom for children has been located—in a portable classroom outside the main school, a story in the April 9th 9news reports. As the parents notes, “the chance for casual interaction with other kids in the hallways and around the building are eliminated […]

By Kristina Chew, PhD -- 11 comments