The Case of Hannah Poling
Hannah Poling is the name of the 9-year-old autistic child whose “pre-existing mitochondrial disorder…. was ‘aggravated’ by her shots,” as was conceded last week by the government in the Court of Federal Claims. Today’s Atlanta Journal-Constitution profiles her and her parents, neurologist Jon Poling and Terry Poling, a lawyer and nurse, note that the court decision “will help pay for the numerous therapists and other medical experts their autistic child needs — now and for the rest of her life.” More about Hannah’s story:
The Georgia girl’s case – and its implications in the vaccine-autism debate – raise more questions than it answers, experts say.
Some medical experts say it’s difficult to fully assess the case because the federal vaccine-court documents are sealed from public view.
“It raised a lot of questions for us,” said Dr. David Tayloe Jr., president-elect of the American Academy of Pediatrics [AAP]. The national medical group’s leadership has been seeking more information about Hannah’s vaccine-court case since last week when a sealed vaccine-court document detailing the government’s settlement was posted on the Internet by an autism book author, then circulated widely among autism groups.
(This would be the court case records that David Kirby wrote about in the Huffington Post last week.)
The Atlanta Journal-Constitution notes that the AAP has been “trying to get access to official documents in the case so medical experts can delve into the science, assess whether there are implications for other children and answer questions from doctors and families” and continues:
“Our responsibility is to make sure the public is given good information and make sure the hype doesn’t distract from public health,” Tayloe said. “I still would not think that we’re going to have evidence showing a role of vaccines actually causing autism.”
According to the leaked document posted online, the government’s Division of Vaccine Injury Compensation concluded that five shots Hannah received in July 2000, when she was 19 months old, “significantly aggravated an underlying mitochondrial disorder” and resulted in a brain disorder “with features of autism spectrum disorder.”
Sallie Bernard, executive director of the national autism advocacy group SafeMinds, called the case “unprecedented” in that a link between vaccines and autism is being made public. Federal health officials “have insisted there is no link at all between vaccines and vaccine components and autism. And apparently that is not true,” she said.
Hannah is said to have started showing signs of autism at “3 months” after receiving her vaccines, though the Atlanta Journal-Constitution states that symptoms of autism appear in Hannah when she was 19 months old.
Hannah requires one-on-one care at all times, said her mother, Terry Poling, a nurse and lawyer. The Polings described how Hannah was a normal, verbal toddler until she received several vaccines during a well-baby visit. Within 48 hours of the shots, she developed a high fever and inconsolable crying and refused to walk. She stopped sleeping through the night. At 3 months of age, she began showing signs of autism, including spinning and staring at lights and fans. For a while, she lost her ability to speak.
When Hannah was 6 months old, as the family came to grips with the likelihood that she was autistic, they turned to leading experts in neurology. “I had to know. My daughter didn’t just suddenly develop autism for no reason,” Terry Poling said.
Hannah’s father co-authored an article about her case, which was published in the Journal of Child Neurology in 2006.
Hannah, who has two older brothers, continues to have mild to moderate symptoms of autism. The family says early and ongoing intensive therapy has been critical for her.
“The biggest question right now for the public is: How unique is Hannah’s case?” said Jon Poling. Poling said he suspects there are other children like Hannah.
Cliff Shoemaker, the Polings’ attorney, said the family has filed a petition with the vaccine court to unseal all of Hannah’s records and allow both the family and the government to fully discuss the case.
Despite this, a spokesman for the U.S. Department of Justice, which reprersents [sic] the government in court cases, would not grant interviews or explain to the AJC why it isn’t releasing the records. HHS officials, who administer the vaccine compensation fund, also declined to be interviewed, citing the court’s confidentiality requirements.
The Atlanta Journal-Constitution emphasizes that:
The language in the document does not establish a clear-cut vaccine-autism link. But it does say the government concluded that vaccines aggravated a rare underlying metabolic condition that resulted in a brain disorder “with features of autism spectrum disorder.”
It seems that there are more than a few issues here: (1) Did vaccines injure Hannah Poling; (2) did vaccines cause her to become autistic; (3) how “rare” is Hannah’s “underlying metabolic condition”?
Tags: asd, asperger, autism, david kirby, mercury, mitochondrial disease, Parenting, pdd-nos, vaccine court, VaccinesRelated Stories
POSTED IN: Legal Issues, Neuroscience, Vaccines
107 opinions for The Case of Hannah Poling
qchan63
Mar 6, 2008 at 4:33 am
I think the reporter must have botched the references to the ages at which various events happened. (Exactly how does a 3-month-old baby “spin”?)
Ms. Clark
Mar 6, 2008 at 5:36 am
This is really badly written:
“At 3 months of age, she began showing signs of autism, including spinning and staring at lights and fans. For a while, she lost her ability to speak.
When Hannah was 6 months old, as the family came to grips with the likelihood that she was autistic, …”
But my question is, how much did their conversion to DAN!-ism in the months following Hannah’s apparent regression contaminate their memories of what she was like before and after the vaccines. Somewhere in the year after the set of vaccines in question, daddy began to consider becoming a DAN! doctor himself and both parents had attended DAN! conventions and they started exposing the girl to the typical quack and/or controversial treatments of that time, knowing full well, apparently that she had a mitochondrial disorder caused by a “point mutation” on a gene controlling mitochondrial function.
Then there are conflicting accounts about the timing and cause of Hannah’s diarrhea. I wonder if they tried to reconstruct a more serious sounding vaccine-implicating scenario after having contacted Shoemaker and after having been in touch with other DAN! parents for a few months. Considering that daddy was thinking about being a DAN! doctor they might have been considered celebs at DAN! conferences, etc way back in 2001.
Hannah might be as autistic as any other child, and maybe vaccines changed her by causing a fever, but her mother admits that it’s possible the same thing would have happened to Hannah without any vaccine, with exposure to virus.
And one has to wonder if mom is talking about taking the money to pay for quack DAN! therapies. If so that would be sad.
Justthisguy
Mar 6, 2008 at 6:12 am
What mitochondrial disorder, exactly, does she have? And is there someplace on the Web or elsewhere I can look that up?
Seems like it would be pretty rare.
S.L.
Mar 6, 2008 at 11:15 am
Justhisguy: Please go to http://www.UMDF.org for information on mito, it is RARE. Hannah was diagnosed following biopsies and spinal tap, she has Type I & III (dx: oxidative phosphorylation disease, with DNA marker).
Notice how this article makes almost zero mention of mito?? Irresponsible reporting. Again, I fear how many autistic children will be submitted to these tests, all for naught. She & her family will be on Larry King Live tonight.
S.L.
Mar 6, 2008 at 11:17 am
FYI…the writer (or someone) has apparently edited the article. The 3 months & 6 months issues have been corrected. That really confused the heck out of me this morning! Still not the best written article…
Leila
Mar 6, 2008 at 1:12 pm
I know my son never reacted to vaccines, so I can’t relate to the Polling’s story. However I know one very credible person whose daughter regressed after a fever post-MMR. So I do believe that there are some cases, probably a minority, were the FEVER causes a reaction in the brain that triggers the disorder. But even if you don’t vaccinate, there will be other events (wild virus or bacterial infections) that may cause the exact same reaction in a child who is genetically prone to develop ASD.
So I’m not opposed to people looking into the vaccine causation. I just think it’s ridiculous that so many people believe it’s THE main or only cause of autism, and that it applies to their offspring even when there were obvious signs of autism prior to vaccinations or autism traits in the family.
Estee
Mar 6, 2008 at 1:26 pm
I will be making a public comment tonight on this on Global National News.
Kassiane
Mar 6, 2008 at 2:03 pm
….WTF? Congratulations, you proved fevers and mito don’t mix, which they knew since I was a child?
Buh?
Someone needs hit with the clue-bat.
Isabella
Mar 6, 2008 at 2:20 pm
Very poorly written article (with mix-ups of age of diagnosis, etc.) notwithstanding, I am finding that in response to this, people seem a bit too quick to judge Hannah’s parents, and are somewhat close-minded when it comes to vaccines being linked to ASD. First off, a mother knows her child more than anyone else. I doubt that Terry’s memory was “contaminated,” as suggested above. I am certain that Hannah was indeed a “normal” child until the said vaccination incident. I am certain that her parents would have seen if there was any sign of early autism. Second, there is certainly something to this case, and it is alarming.
However, what I don’t understand is that if thimerosal has been used as a preservative in vaccines from the 1930s, and supposedly since 2000 there are thimerosal-free vaccines available, why is autism an epidemic today? It would also be interesting to see studies on the link between thimerosal-free vaccinations and autism vs. thimerosal-containing vaccinations and autism. I’d also like to know more about this mitochondrial disorder. How common is this? How can they test for it?
There are many more questions than answers. I hope this is all figured out and squared away soon because I know my 7-month old son is perfectly normal. I would hate to be one of these parents a year from now — with a lawyer and a pending lawsuit.
grenouille
Mar 6, 2008 at 2:50 pm
This whole case becomes more and more upsetting to me. I guess my initial take was that the parents were somehow pawns of a lawyer or that their victory was being trumpeted by the DAN! crowd without their consent.
Now I think this whole thing is a carefully orchestrated scenario and it’s sickening. I simply cannot believe that the neurologist father does not know that his daughter’s issues are vastly different from those of the other litigants.
I think he agreed with some DAN! lawyer to file a case he knew was slightly fraudulent but probably winnable. How awful to use your child’s sickness (falsely, I might add) to advance your pet theory.
codeman38
Mar 6, 2008 at 3:16 pm
I have a copy of today’s Atlanta Journal-Constitution sitting right here, and I can vouch that the way the article was presented in the actual newspaper is even more worrisome.
All that is above the fold is a picture of Hannah and the headline: “First Autism-Vaccine Link: HOW HANNAH MADE HISTORY.” I think this headline is even more deceptive than what’s posted on the web site– partly because the article claims the case doesn’t necessarily establish a vaccine-autism link!
And only the first two paragraphs of the article are printed in full on page A1. The third cuts off before the first sentence is even through, at “The language in the document does not establish a”; to find out what it doesn’t establish, one must turn to page A14. And even those two paragraphs and a half-sentence are ‘below the fold’.
Someone reading just the front page without turning to page A14 for the continuation is going to get a distorted idea of the details of the case; someone reading just the headline, which is all that can be seen in a newspaper box, will get an even more distorted impression.
Needless to say, this bothers me for a number of reasons…
Alicia Green
Mar 6, 2008 at 3:23 pm
I have not vaccinated my 8 month old son because with years of research I am extremely concerned about whether the benefits outweigh the risks. I feel like there is not enough studies done on the outcome these immunizations hold and I don’t want my baby to be subjected to something I don’t feel is going to benefit him more than hurt him.
Kathy
Mar 6, 2008 at 3:33 pm
Donna Williams has written a very good piece about this controversy, Kristina
Check it out at http://www.donnawilliams.net
Kathy
Mar 6, 2008 at 3:37 pm
Sorry, wrong link guys.
Should be http://blog.donnawilliams.net/
Regan
Mar 6, 2008 at 4:55 pm
Isabella said,
I’d also like to know more about this mitochondrial disorder. How common is this? How can they test for it?
http://www.umdf.org/
Regan
Mar 6, 2008 at 5:08 pm
The deal that concerns me is that some of this seems to be spinning into–the vaccinations caused the mitochondrial disorder ala AZT. Sounds improbable, but I have already received 2 emails to that effect. I guess we shall find out in the near future whether my concern has legs.
If I was parent whose child had mitochondrial disorder and susceptible to pathogen triggers, I might be wondering about the possibility of these stories steering people steering away from vaccinations, thus increasing the odds of encountering a wild-type disease.
Eleanor is “officially” diagnosed as late-onset/regressive autism. While a corner of my mind does wonder about the mitochondrial disorder, practically I know it’s highly unlikely since she has none of the associated physical symptoms and has no regressions after illness.
Emily
Mar 6, 2008 at 5:32 pm
Mitochondrial disorders are quite rare. In general, the regions of mitochondrial DNA that have jobs to do cannot change much at all because the slightest change in the protein product results in malfunctions severe enough to trigger cell death and thus the nonexistence of the organism. Mitochondria have to be pretty much unchanged for life to continue.
There are a few mitochondrial disorders that make it through and that vary in severity depending on how many affected mitochondria the zygote ends up with from the mother. At any rate, this particular alleged interaction should have less influence on our understanding of the etiologies of autism than those studies finding genes that have gone awry in <1 of people with autism. I don’t see how it would be very useful in a broader sense given the rarity of mito disorders.
Yes, the father undoubtedly knows that this is not a broadly applicable scenario. And the poster above who pointed out that high fever was probably the trigger is likely correct, given the metabolic requirements and involvement of mitochondria in these situations, especially as it seems that oxidative phosphorylation was involved. We’re talking about inflammation processes here, which would happen with actual infection or vaccine.
Regan
Mar 6, 2008 at 5:53 pm
United Mitochondrial Disease Foundation Statement on Vaccines, Autism and Mitochondrial Disease
http://tinyurl.com/2mh8rb
Kristina Chew, PhD
Mar 6, 2008 at 6:28 pm
@Regan—-I’ll quote the statement, which does not mention autism.
@Emily,
thanks as always for sharing your knowledge—-I think you comment needs to be repeated.
@Kathy,
really interesting what Williams has to say about her own immune system and disease flare-ups—-
Kristina Chew, PhD
Mar 6, 2008 at 6:45 pm
Sullivan at Grey Matter/White Matter has a transcript of the press conference.
Allison Jones
Mar 6, 2008 at 7:13 pm
I’ve been studying why my son was paralyzed for three days by his first shot, when he was four years old (in 1984) when he got his first DPT for school (had he been six weeks, it would have been his heart too, that’s SIDS). Actually, it doesn’t matter if they take out Thimerosal, every vial of any vaccine have the germ particles suspended in Aluminum and Mercury anyway. The whole thing is heavy metals, that’s why they don’t’ need another preservative! That’s why the doctors don’t shake the vials before they give it, they don’t need to. It’s already suspended, otherwise the material is too small to administer. (nor check weight to dose, nor allergic reactions, the genetic factor)!
It gets worse though. After various things can damage developing dendrites (arms of the brain cell that listen to other cells talking), These are like multiple branches, while the singular Axon is the talker to one other cell. Only the Higher Brain cells recover, but the Old Brain at the top of the brain stem does not. So after the fire from the poisons go through and burn and destroy cells throughout the entire brain (if one survives, must Autistics are sensitive to Pertussis, because many of those sensitive to either Diptheria of Tetanus died, or were so severely injured, they’re not vaccinated again. Meanwhile, luckily there recovery in the higher brain, in can grow new cells. Unfortunately, the old brain that harbors all Instinctual Behavior, and Regulates all the Chemistry of the Body, it is foundation place (by being the germ of the seed), there is no replacing those. That’s why instinctual behaviors have to be taught to their conscious, cognitive minds. (Instinctual behaviors, like, self-preservation, empathy, sympathy, communication, etc). Autistics were born perfect, their budding brain cells, which have not finished growing Myelin Sheath until 24 months (Myelin is the protective insulation that takes 2 years to grow around the nerves). That’s why I say, there’s no hurry, don’t vaccinate until the child is at least 2 years, or in my experience, over 4 years of age!
Also, the MMR causes Regressive Autism. The living Measles virus targets the nerves, hides, while the immune system destroys it, simultaneously destroying the Myelin Sheath insulation along with the virus. There’s lots of measles virus in those vials, way more than natural infection. And though the higher brain can survive the destruction and come back, the old brain cannot. That’s the cause of “Regressive Autism.” While the DPT takes down whoever is sensitive to any of those intense toxins. There should be an allergy test for who is sensitive to any of the nasty things in those vaccine recipes!
I know what causes Autism, Allergies, SIDS, and though more pieces needed, I can see the whole picture. We are injecting into human babies (born gestationally premature because of the big head), the most toxic substances known to man (Diptheria is inevery bacterial vaccine, so whatever germ they want to be noticed will be noticed), the very germs we wish to avoid them exposure! Japan used to wait 2 years to vaccinate, waiting for Myelin to finish it’s job, but there were still problems, so now it’s voluntary; and with current sanitation, they don’t suffer from disease while producing brilliant progeny, while America produces 50% of the world’s neurologically damaged children. Humble kids from India come over to America, learn English immediately and move on to the highest education!
I finally have a little booklet out, called “Tracking Vaccinations - The Autism Trail”, by Allison Jones, at http://www.trackingvaccinations.com
Allison Jones
Mar 6, 2008 at 7:23 pm
I need to fix a typo from my previous comment… America has 90% of the world’s neurologically damaged population… from vaccinating sooner than anyone else, and shooting them with more, like, enough Diptheira to last 200 years by the time they’re still just toddlers!
We’re preening from the population, those whom are genetically sensitive to various toxins, and unlucky with the living Measles virus being injected, and more!
Dave Gormley
Mar 6, 2008 at 8:59 pm
There is a bit of mis-information here regarding Mito diseases.
We have a son with a mitochondrial disease. Mito experts believe that Mito diseases may be the root cause for many misdiagnosed disease symptoms including loss of motor control, muscle weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection. Additionally, they believer there to be strong evidence to support mitochondrial links to diseases like Alzheimer’s, Parkinson’s, cancer and Autism spectrum disorders.
Mito diseases are rare? Not true! When our son was diagnosed with his Mito disease, we were told there were about 40 Mito diseases and about 1 in 4000 had a Mito disease. We just were at a Mito awareness event Saturday, and I heard there are over 130 Mito diseases and the rate may be 1 in 1000 or lower. I expect that both those trends will continue. Currently the NIH grants money to many research areas including for this year $535M to study tobacco, $533M to study smoking and health, $287M to study STDs, $140M to study the health related to American Indians and Alaska Natives, and $5.65B to study cancer–all worthy subjects of research. This year the NIH earmarked about $5M to study mitochondrial disease. Directing significant research dollars to study Mito disease will benefit many other areas of research as Mito diseases affect the cells ability to generate the energy we need to live and sustain life and growth.
There are tests that can be done to check for Mito diseases. However they are very expensive and are often either inconclusive or will not show a positive until later in the individuals life, so it is possible to get a false negative. I also think that there is a slippery slope here regarding “the vaccine triggered an underlying condition” in that where does that precedent ultimately end. As with many things…the keys are education, awareness and dollars. I feel terrible for this family, but I am not sure I get the liability in this situation.
Stacie
Mar 6, 2008 at 9:13 pm
The AJC has an alternate version of the article posted on the website that has the time line straightened out. She got the vaccines and then it says “within 3 months” and “after six months” of having the vaccine rather than at three months and at six months of age. They must have realized the mistake and done some editing after putting out the original….
Emily
Mar 6, 2008 at 10:09 pm
I think that I should clarify that there are some disorders that people think are mitochondrially based, like gettin’ old, for example, that are (obviously) quite common. But for diseases that manifest in childhood that trace to ox-phos pathways, those must be relatively rare because of their enormous effects. It should not escape anyone’s notice that one of the most active areas of oxidative phosphorylation would be the brain, where glucose is used apace. There is a close association between these types of mito disorders and myopathy AND encephalopathy. Ahem.
codeman38
Mar 6, 2008 at 10:10 pm
@Kristina Chew: Any idea why my comment earlier, regarding how this article was even more misleadingly presented in the AJC, might have gotten auto-moderated by the blog software? And should I try reposting it? It’s still in the moderation queue, but not showing up publicly.
Emily
Mar 6, 2008 at 10:19 pm
I just read this: “The fact that his wife also has the disorder yet displays no signs of autism suggests that his daughter’s symptoms are not genetically caused, he said.”
That’s just nonsense. And here’s why:
“The inheritance of these diseases does not follow the rules of Mendelian genetics. Instead, there are large random shifts at the mtDNA mutation level between mother and offspring. This study explains how these large random shifts occur within the first three weeks of embryo formation, through the combined use of computational modeling and a mouse model system.”
And
“A woman’s eggs are formed at a very early stage in her development. As a precursor cell divides into a number of eggs, so the mitochondria from that cell are distributed randomly throughout these eggs. Hence different eggs can contain very different amounts of mutant mtDNA, which determine the amount of mutant genetic material that is passed on to the next generation.”
This doctor knows…or should know…that there will be enormous variation in the manifestation of a mitochondrially based phenotype among mothers and offspring and among siblings born to the same mother. It depends on how much the offspring gets of the “bad” mitochondria the mother is toting in her cells. Get a bunch, you’re going to be sicker. Get a few, you may not show any symptoms at all.
Only if this were a mitochondrially based disorder inherited via nuclear DNA would there be an expectation that the mother and daughter would have similar phenotypes. Given that there is obviously an assumption that the child inherited this from the mother, they obviously consider this to be a disorder based in mt-DNA, NOT in nuclear DNA, or they’d be talking about *either* parent.
Something seems odd to me about all of this, about what these folks are saying in the interviews, etc.
I also note that some researchers–not surprisingly–have found a bit of a link between OXPHOS problems and autism. Hmmmm.
Kristina Chew, PhD
Mar 6, 2008 at 10:51 pm
@codeman38, Your comment has now appeared—-apologies for the delay. I am linking to it in another post.
What the Government Said and What It Didn’t
Mar 6, 2008 at 10:53 pm
[…] Be wary of the headlines. (And please read this reader’s description of the actual front page of the Atlanta Journal-Constitution.) […]
Jorma J. Takala
Mar 7, 2008 at 1:03 am
Vaccines are NOT the cause of Autism.
Read my myspace page to find out the truth about the cause of Autismm ADD, ADHD, Bipolar, Depression, Aspergers Syndrome.
The cause of the autism is NOT the vaccines, it’s the toxic artificial dyes used in them.
My myspace page tells about an 18 month old girl named Ashleigh, who was seeing NIH doctors for a reoccuring fever and a rash that simply would not go away.
The doctors at NIH caused this little girl to develop a nystagmus (eye twitching) and myoclonus (twitching of the limbs) by giving her an injection of a contrast that was used for her MRI, or CT scan.
The contrast cause her to have severe neurological problems and the information on my myspace page helped!
After following my recommendations the little girls fever and rash were gone!
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Regan
Mar 7, 2008 at 8:43 am
Kristina,
There’s been a lot of things said with a lot of certitude today, and I surely don’t want to contribute to that, so this is purely information for those who might want to read further.
I took a gander over some of the research literature to see what is out there in relation to autism and mitochondrial disorder, not to be confused with mitochondrial dysfunction, just to get more background on this. The Poling case is big because of the current publicity wave about the settlement, but scanning some of these papers, it seems that it would be an error to assume that such cases present identically as the Poling,et al. paper and the below might provide additional reference. I don’t claim that this is all that might be out there.
SAGE happens to have some of the articles
J Child Neurol/Journal of Child Neurology for
Free Trial (Neurology and Neuroscience) until April 30
http://online.sagepub.com/cgi/freetrial
• Fillano JJ, Goldenthal MJ, Rhodes CH, Marin-Garcia J. Mitochondrial dysfunction in patients with hypotonia, epilepsy, autism, and developmental delay: HEADD syndrome. J Child
Neurol. 2002;17:435-439.
• Graf WD, Marin-Garcia J, Gao HG, et al. Autism associated with the mitochondrial DNA G8363A transfer RNA (Lys) mutation. J Child Neurol. 2000;15:357-361.
• Lerman-Sagie T, Leshinsky-Silver E, Watemberg N, Lev D. Should autistic children be evaluated for mitochondrial disorders? J Child Neurol. 2004;19:379-381.
• Martin-Garcia J, Ananthakrishnan R, Goldenthal MJ, et al. Skeletal muscle mitochondrial defects in nonspecific neurologic disorders. Pediatr Neurol. 1999;21:538-542.
• Olivera G, Diogo L, Grazina M, et al. Mitochondrial dysfunction in autism spectrum disorders: a population-based study.
Dev Med Child Neurol. 2005;47:185-189.
• Poling JS, Frye RE, Shoffner J, Zimmerman AW. Developmental regression and mitochondrial dysfunction in a child with autism.
J Child Neurol. 2006;21:170-172.
(The case study on Hannah Poling)
• Pons R, Andreu AL, Checcarelli N, et al. Mitochondrial DNA abnormalities and autistic spectrum disorders. J Pediatr. 2004; 144:81-85.
• Tsao, C-Y, Mendell, J.R. (2007). Autistic disorder in 2 children with mitochondrial disorders. J Child Neurol. 2007; 22:1121-1123
Interesting because of discussion of potential contaminants, confounds and diagnostic confusions in determination of mitochondrial disorders and interpretations of biochemical tests. It also critiques some prior research and presentations as to whether mitochondrial disorder would be the only explanation for the data.
Lerman-Sagie, T., Leshinsky-Silver, E., Watemberg, N., Lev, D., Should autistic children be evaluated for mitochondrial disorders?. Child Neurol 2004;19:379-381.
ABSTRACT
Autism is etiologically heterogeneous; medical conditions are implicated in only a minority of cases, whereas metabolic disorders are even less common. Recently, there have been articles describing the association of autism with mitochondrial abnormalities. We critically review the current literature and conclude that mitochondrial disorders are probably a rare and insignificant cause of pure autism; however, evidence is accumulating that both autosomal recessive and maternally inherited mitochondrial disorders can present with autistic features. Most patients will present with multisystem abnormalities associated with autistic behavior. Finding biochemical or structural mitochondrial abnormalities in an autistic child does not necessarily imply a primary mitochondrial disorder but can also be secondary to technical inaccuracies or another genetic disorder. Clinicians should be careful in diagnosing a mitochondrial disorder in an autistic child because
it has important implications for accurate genetic counseling, prognosis, and therapy.
Jorma J. Takala
Mar 7, 2008 at 9:48 am
The Autism is NOT caused by the Vaccines.
Read wwwDOTmyspaeDOTcomFORWARDSLASHlordnlady
For the real truth behind the cause of Autism.
I’ve been working on this for over two years since I discovered I have Aspergers Syndrome and a sever bipolar/manic disorder which I ultimately ended simply by changing my diet.
Read my page for the undisputed truth about the REAL cause of Autism!
Jorma J. Takala
Mar 7, 2008 at 9:51 am
I dare anyone to prove me wrong.
I know this is a set up cause I am not wrong.
AND I CAN BACK IT UP!
http://www.myspace.com/lordnlady
Kristina Chew, PhD
Mar 7, 2008 at 3:24 pm
@Regan,
More than helpful list—–wonder if many parents will (or are already) seeking to have their children tested for mito?
About This Autism Debate
Mar 7, 2008 at 3:32 pm
[…] the wake of the concession by the government in the case of a 9 year old girl whose underlying, rare mitochondrial disorder was “aggravated” by vaccines, CBS News has reposted an article that was originally […]
Regan
Mar 7, 2008 at 5:09 pm
Kristina said,
“wonder if many parents will (or are already) seeking to have their children tested for mito?”
Darn that I can’t recall the exact article, but I did see the quote that a trial lawyer plans to tell his caseload of 1200 to do so.
A concerned Mom
Mar 7, 2008 at 7:47 pm
I find it incredibly difficult to understand how folks easily discount vaccinations as a possible link to ASD symptoms — when I was a child, there were supposedly only 1 in 10,000 children diagnosed with an autism-related disorder. Now we’re getting hit with 1 in 150? Unless some bizarre new genetic abnormality suddenly popped up, this is likely to be environmentally linked. What other possible causes has anyone heard of — other than the “it-just-kind-of-happens-sometimes-around-18 months-without-any-real-reason” excuse?
Bink
Mar 7, 2008 at 9:04 pm
Dear A Concerned Mom,
I am a mother of an autistic child. Please realize that no one is “easily discounting” a link between vaccines and ASD symptoms. Please also take the time to step back and educate yourself about the statistics and facts. I hope you are a real person and not just yet another fake internet persona trumped up by some DAN chiropractor looking for business. If you are real, please, just educate yourself. The facts speak for themselves.
Emily
Mar 7, 2008 at 9:30 pm
There’s nothing “easy” about the millions and millions of research dollars that have been poured into investigating a putative link between autism and vaccines, monies spent around the world on these studies. No one has identified a link, much less a mechanism.
Autism in our family did not happen at “around 18 months”; our children were born the way they are. Scout’s honor. I’ve got witnesses.
As for the 1 in 150 value, you can’t say that this oft-quoted prevalence is something new just because we only recently figured it out. There was an enormous and diverse microbial world surrounding us all for millennia, but we had no idea they were there until a few centuries ago. Does that mean that suddenly, in the 15th century, there was a “microbe epidemic”? No.
Stanley Prusiner identified prions in the 1990s. Does that mean that there was suddenly a prion epidemic or that there hadn’t been prions before? No.
Autism existed well before it got a name in the 1940s, and long before there were vaccinations. Look at the literature. It’s highly likely that people weren’t counting right or extrapolating appropriately or applying the same criteria between studies or using the same diagnostic criteria used today. I’m not making that up. Anyone who’s matriculated at Google U can find this out for themselves.
And just because parents don’t recognize autism is there until a child gets a specific vaccine doesn’t mean it wasn’t there.
In other words, the timing of recognition /= timing of onset OR timing of genesis.
No one has “easily discounted” anything here. Some of us are simply more inclined to use our powers of reason to sift data and draw conclusions, rather than relying on an emotional construct to explain everything or falling for people with agendas who exploit our emotional susceptibility. The Web can be a dangerous place for people who don’t ensure that the information they’re relying on isn’t promulgated by people who failed to check their agendas at the door.
I prefer to focus future millions of dollars and energy expenditure on avenues of research that actually hold some promise. The vaccine/mercury horse started off mortally wounded, and died a long time ago. Yet people keep beating on the thing.
AdvocateMom
Mar 8, 2008 at 12:15 am
I think it is important to note that nobody is disputing the fact that SOME children indeed are born autistic. I think what many of us are stunned by is how many children are developing normally and then develop autistic like qualities, lose language, skills, interpersonal communication, that were present at some point. These are the children I think about and research all the time.
I think this case did not go forward because the government felt it was too risky - there is too much at stake if they on the record admit that some children might be genetically predisposed to being harmed by vaccines. in this instance it was a mitochondrial condition - there are bound to be many others.
Think of this scenario - more and more moms are having babies in their late 30s and 40s. It is undisputed that the risk of genetic defects in babies drastically go up with maternal age. Some of these genetic problems can be identified, many more cannot - the science is just not there yet. Thus, you have babies with genetic conditions that might make them susceptible to harm from things like toxins - which are everywhere now - air, food, water. These sorts of things can “trigger” neurodevelopmental problems in children, we know that already. Factor in an unprecedented number of vaccines when babies immune systems are not yet mature. If one follows the schedule recommended by the American Academy of Pediatrics - one will be giving their child 35 immunizations by the time they are 18 months old (keep in mind a DTaP is three vaccines combined - the latest MMRV -measles mumps, rubella, varicalla is four). This is not including flu shots. And by the way - nine vaccines at a time is about the norm for some of the visits. At a four year old visit (and coincidentally the second age at which regression in development is common) children are supposed to receive vaccines for polio, diptheria, tetnus, pertussis, measles, mumps, rubella, and chicken pox! That is a heavy load.
If a child is has an underlying genetic condition, that often will not be identified, how can anyone unequivically say that the vaccines don’t cause this harm? It has not been studied. While individual vaccine cause and effects have been studied, I have seen NO STUDIES about the cumulative effect of 35 vaccines over an 18 month period and possible impacts on the neuro system, immune system and gut. And keep in mind, many children with autsim also have leaky gut syndrome and immune system weaknesses. Coincidence? I don’t know - but I think it is arrogant to discount the possibility that for a sensitive population of children, the current vaccine schedule might be overly aggressive and harmful.
I am not anti vaccine. I am very very anti the current vaccine schedule. 35 vaccines by 18 months is just crazy. Hepatitis B for all newborns? Why??? Convenience? I am guessing that’s the real issue - easier for parents, doctors, and insurance companies. Oh, and cheaper too - insurance companies don’t want to pay for extra visits to the doctors (and they don’t if you are going just to get a vaccine).
So, in a nutshell - more of our kids are born to mothers of advanced maternal age, some of those kids might have genetic abnormalities that will not or cannot be detected. They are bombarded by toxins and vaccines during their infancy - autism, ADHD, asthma, speech delays, sensory integration disorders - all reaching unprecedented levels. I think its worth studying and looking into.
There is no easy answer.
I am not the parent of an autistic child, but I am the mother of a special needs child who was developing normally and then lost language and other skills. She is doing great now at almost four years old and intensive therapies and some nutritional supplements have been key to her progress (we have not seen a DAN dr, but I also don’t discount some of the DAN treatments including some of the nutritional interventions- they work miracles for some children). Do I think vaccines caused her condition? Was it a virus she had at 15 months old? The medication given to treat her illness? One just cannot know -but I have great hope that if we look more carefully into the vaccination issue, the medical community will ultimately figure out a safer vaccination schedule that insurance companies will support. Our children are our future - and right now there are not nearly the resources needed to care for all of these neurologically damaged children in 10 or 20 years when they are adults. We are in crisis mode. Its time to stop the arrogance, and naysaying, and get brilliant minds working on figuring out what the hell is going on with our children.
We are out of time
Emily
Mar 8, 2008 at 10:50 am
“Mito diseases are rare? Not true! When our son was diagnosed with his Mito disease, we were told there were about 40 Mito diseases and about 1 in 4000 had a Mito disease. We just were at a Mito awareness event Saturday, and I heard there are over 130 Mito diseases and the rate may be 1 in 1000 or lower. I expect that both those trends will continue. ”
Oh my God! It must be an epidemic! Something in the environment is causing this dramatic increase! I blame vaccines.
One in four thousand is 0.025%. That’s pretty rare, even though I was referring specifically to OXPHOS disorders. You mess with the OXPHOS pathway, and you’ve got trouble. And actually, since aging is considered a “mitochondrial disease,” I’d say that the frequency is really 100%. At some point, you have to ask when it’s a “disorder” and when it’s just “normal.”
There are so many “mito” diseases because just about every little change in a coding region translates into disorder when you’re talking about these highly conserved eukaryotic pathways. These “SNPs,” each of them a single point mutation among thousands and thousands of nucleotides, might end in mitochondrial disorder. I’m surprised there aren’t more than 130 alleged.
By the way, it’s not unusual for scientists to believe that their focus of research is the most important and broadest reaching, if only someone would recognize that. If they produce the data and make their arguments appropriately, they’ll get their funding.
Thankful
Mar 8, 2008 at 10:54 am
Advocate Mom
You have made more sense than any other comment I’ve read- Thank you. Being reasonable is the only way we are going to help our children.
Allison Jones
Mar 8, 2008 at 12:34 pm
Every library has a PDR, “Physicians Desk Reference,” and annual massive book that has all the manufacturer of drugs, their recipes, notes, and warnings about them (Vaccines are not vitamins, they’re drugs). There are no dyes in vaccines, but they have mixed together a batch of scary stuff, between toxic bacteria, being made of heavy metals, and with the Regressive Autism of the living Measles Virus. Notice, when they took out Thimerosal, they didn’t replace it with anything? They don’t need to, cuz the whole thing is heavy metals to suspend the particles of germ (designer diseases/vaccines). Look at the recipes, they absorb or “Adsorb” Mercury and Aluminum to whichever germ they’re using. You can tell by the darkness around the eyes of Autistic Children, that they’ve been poisoned by Mercury. People with filliings of that stuff, can only tolerate it because they were older when they began to be poisoned by it. (anyone with metal fillings, are chewing on Mercury and swallowing micro doses). Babies are different because they have not finished developing yet. Add to that, the dilemna of who’s sensitive to which toxic bacterial vaccine, and then, whose unlucky enough to win the battle against the living Measles army, but lose out with Old Brain recovery. In all these cases, developing dendrites die in the brain, from various effects from those things. The Higher Brain can recover and grow new (and better with all the attention), but the Old Brain cannot, the place of all Instinctual Behavior, that’s why they all have to be taught instinctual behavior to their cognitive, conscious mind. That’s why they are conscious of what’s going on.
Kristina Chew, PhD
Mar 8, 2008 at 12:43 pm
@Thankful,
regarding being “reasonable”: The response by the public has been anything but “reasonable.” Few people are really taking the time to carefully read what the court case says and what the child’s diagnosis was; there should be more noting that “autistic-like symptoms” are referring to, not a full-out diagnosis of what some call “full blown” and “classic” autism. Another word that is getting overlooked is the word “rare” as in “rare mitochondrial disorder.” The numerous that the case says “vaccines cause autism” are seriously misrepresenting that actual court decision.
When I used to teach first-year college students composition and reading skills, I continually emphasized was close and careful reading. I don’t think that most of the public is showing such skills right now.
Allison Jones
Mar 8, 2008 at 1:26 pm
There was no Autism in Japan until America brought over it’s vaccines after World War II. And they figured it out immediately (the DPT) and why, and banned vaccinating children for two years (waiting for Myelin nerve insulation to finish growing), and brain cells to finish making connections), and now only have only a Voluntary Program! China had no Autism until America brought over it’s vaccines in 1999, now they have millions! America had no Autism until they started using the DPT in the 1940’s. (dubbing them “Autistic Children,” because there were never adults before, meanwhile the numbers soar parrallel to increasing vaccine doses and potency, why the Pediarix brand has four times as much Pertussis Toxin as Adacel, and has ten times that of old DPT). Only the rich could afford the first DPT in the beginning, so the disorder was blamed on the upper class moms for having too many servants (Refrigerator Mother syndrome)! They didn’t realize that their Old Brains had been seared by the toxins in the Pertussis and Diptheria and Tetanus, and this area cannot grow new brain cells, like the higher brain can. The Old Brain harbors human Instincts, like Self-Preservation, Empathy, Sympathy, Communication, Sensations etc). Plus it regulates all body chemistry, explaining the digestion problems. Read about it. The Pituitary is there, at the base of the brain! The Genetic Factor comes in play with Toxins from any deadly creature (and all bacterial vaccines, just not the viral ones). It’s like, whether a child is allergic to bee stings or not, and with the DPT (DTaP) - those that die of SIDS were the most sensitive to those particular toxins (and that’s the Genetic Factor), those that are killed from it, survive as Autistics. (Pertussis is milder and causes most of Spectrum Disorders, that’s why the increase of Pertussis toxin in the new DTaP, has made an increase in Autism as a whole!) Those that survive the first gauntlet of shots and reach the MMR stage, need the Luck Factor (!) to survive that battle intact! The immune system ends up destroying Dendrites/Brain Cells while eating the Measles virus that always hides in the Myelin, by nature, it targets the nerves! The Dendrites die after their Myelin gets eaten by the Immune System to get at the Measles. Myelin Insulation is only One-Cell deep, a singular cell has wrapped itself around the nerve numerous times, to make an insulation for electrical flow). They’re called Schwann Cells, and they form a row, just like beads, along the length of every nerve in the body, and start wrapping for 24 months. So, the living Measles hides in this singular cell, which is all the nerve has, and it will be lost in the battle, because the immune system will win, and digest everything.
Emily
Mar 8, 2008 at 2:08 pm
The above is utterly nonsensical. It hardly makes any sense and is essentially a tissue of misinformation from beginning to end. Good Lord. Is *this* what the anti-vaccination people are relying on?
Cliff
Mar 8, 2008 at 2:45 pm
Advocate Mom,
I’m going to take a little time to discuss some of the points you brought up. None of it is personal, but you at least have been far more direct and clear than most, so it makes it easier to get to the rationality. As always, nothing personal.
First of all, there is this assumption that the government has these wide, overarching powers to basically control academic studies in regards to vaccines. I don’t think that this is true, or even currently makes sense. When it is going through so many channels (you’d have to indict almost every branch of government, not to mention several universities), it’s not as if all of those people a. are that well coordinated b. have the same motive to control the media information. It’s not like twelve people would have to come clean, we’re talking a large number of people here.
Ok, so let’s move onto the genetic argument. In this case, it could be true. It’s a blind argument (there’s no strong technical support here), and it relies largely on fear of unknown substances.
But that’s the catch. I could reconstruct this argument to say that refined sugar causes autism. It’s not that difficult, really. We’re feeding out children all kinds of thing processed in ways they’ve not been used to. Some genetic factor might make it so that children have an adverse reaction to refined sugar. Could be older mothers. I don’t have any scientific evidence for that, but since there isn’t any in the argument, I don’t need to.
In other words, it’s almost a completely self-contained argument (only thing that it relies on is the introduction of a foreign substance). It essentially is a clump of conditionals that could, by changing subject and object, be created to say any number of things. Teddy bears could create autism. Or evil, if you did a little backtracking (if I was to make the claim “But that’s not really evil. That’s just being angry or something” about any evil that didn’t fit in with my time schematics, I could make evil to be recent as per the invention of the teddy bear. Laugh if you want, but it has some parallels to the subject matter at hand).
Now, there is one nugget in there which I think at least has some value; children with autism do have a tendency for certain stomach-related illnesses. Thing is, they may not be related in causation that way. I could easily make the argument that being autistic is related to certain personal stressors that then lead to the stomach problems. People get stress ulcers, no? So, while noteworthy, this isn’t convincing evidence, either.
You know, any strength the argument has is actually independent of vaccines. You might as well simply make the claim that mothers are bearing children at an older age, and thus have genetic influences which cause certain conditions. It’s a slightly less blind argument, because you now only have to assert one less premise, and that the condition exists isn’t being heavily discounted (though you still have to prove that those conditions caused all of the others, and causation is hard to prove).
So I’m simply not convinced. There isn’t the evidence, and right now I’m not dealing with arguments that have the strength to convince me of a plausible causation outside of an argument which could say the outlandish.
Cliff
Cliff
Mar 8, 2008 at 2:53 pm
Allison, I’m reading many assertions that really are hard to swallow as they stand. There’s no evidence to suggest that the U.S brought over autism to another country, and you’ve blatantly begged the question so many times it becomes hard to address the writing itself.
And, again, it’s hard to say that children can’t deal with what is a really, really little amount of substance. Even if you did, potential “harm” is not autism, so you have to back up and make that argument, too.
Cliff
c.b.
Mar 8, 2008 at 3:43 pm
It’s very disturbing that the father is a neurologist and the mother is a lawyer and nurse and they decided to “finish off” their daughter by administering 5 vaccines on the same day, then sue the government.
Chuck
Mar 8, 2008 at 4:42 pm
Cliff,
First of all, there is this assumption that the government has these wide, overarching powers to basically control academic studies in regards to vaccines.
You may want to go here to verify the assumption
http://conspiracyfactory.blogspot.com/2008/03/if-mccain-wins-science-loses.html
sketical
Mar 8, 2008 at 5:08 pm
I am more willing to believe that it is vaccines causing autism than a simple change in dietary regimen.
Kristina Chew, PhD
Mar 8, 2008 at 5:13 pm
@Advocate Mom,
I’ve long thought that it would be interesting to consider the numerous reports about a child who was developing “normally” and then “regresses” into autism. In the first case in vaccine court last June, it was found that Michelle Cedillo, whom the case centered around, had shown signs of autism prior to her receiving the vaccines that “caused,” as it was claimed, her autism. Videotapes of Cedillo revealed that she showed a lack of joint attention, for instance: A child just not being able to speak (and, in Poling’s case, “refusing to walk”) are not necessarily signs of autism.
Also, in any discussion of the increase in the prevalence rate of autism, much more attention needs to be focused on how the diagnostic criteria for autism have changed and evolved since Kanner’s first paper in 1943. There are many more autistic adults out there than is often acknowledged, in part because they may not have any diagnosis. Best wishes—
skeptical
Mar 8, 2008 at 6:51 pm
excuse me, that’s skeptical not sketical.
Martha Carr
Mar 8, 2008 at 11:07 pm
I am the parent of a 10 year old girl who was born happy and healthy. She developed normally, meeting all milestones on time. Then 53 days after her 3rd Dpta vaccine I was rushing her to ER with seizures. Her diagnosis was Accute Disseminated Encephalomyelitis (ADEM). Rare with only listed causes as vaccines, rare viral infections and no known cause. At 8 months she bounced back pretty quick. She had to relearn to roll over, sit up, crawl and the other normal things they are doing at 8 months. When I confronted her neurologist and ask if her vaccine could have caused this, his comment was “There is no way the vaccine caused this and the chances of this ever happening to her again are 1 in a million”. Her 4th Dpta was due the following November, but because of a cold she did not receive it until December 3rd. 32 days later I was again rushing her to the ER with seizures. It took her 2 weeks to respond to the steroids. We brought her home unable to roll over, she just layed there. It took some 2-3 months to regain all of her abilities. Her speech was severely affected. Now at 10 years old she is just now learning to read some, her speech has come a long way, but she still struggles some. She has very bad rages and has to be medicated to go to sleep at night. This consumed our lives but we are so grateful she is doing as well as she is. With medication the rages are fewer and milder. I filed a Vaccine Compensation claim also and after 3years the courts conceded her case also. Our daughter receives weekly OT, Speech, and tutoring. It will be a lifelong condition and she will always need help in certain areas. As a mother, I know we need vaccines, but I think it is the governments responsibilty to see that they are safe. Vaccines are big business and for that reason, pharmaceutical companies get away with testing these as little as possible. The government spends $0 dollars in vaccine research. Vaccines are no different from penicillin, some people can take it just fine, but it has the ability to kill some. Do you know where the money in the Vaccine Fund comes from? Well, for every time a child is vaccinated, a portion of the cost of the vaccine is directed to this fund which is controlled by the government. There is billions in it. So if you think you have a child that has been injured by a vaccine, file a claime. It has to be filed within 3 years of the injury.
Kristina Chew, PhD
Mar 9, 2008 at 3:20 am
Latest from the Philadelphia Inquirer notes that the Polings are “exploring” two theories about what happened to Hannah:
Cliff
Mar 9, 2008 at 3:54 am
Chuck,
That, while problematic at some level, isn’t the wide, arching control needed to suppress all of the studies and to assumes that situation applies to all (let’s assume for now that the vague overlying message has control of the money and the research. In this case, an independent third party, such as Autism Speaks, would fill that void quickly to fund such a project, if asked. Not only that, but it’d be the best way, given that saying so would receive more attention and given more for being the wanted exception).
Cliff
Regan
Mar 9, 2008 at 5:59 am
Emily gave a great explanation, but I think this (old) NYTimes article of 1990 adds a little more user-friendly explanation of the distinctions of the genes within the mitochondria vs. the cell nucleus, and differences of distribution and phenotype.
http://tinyurl.com/3xv498
Mary Anne
Mar 9, 2008 at 6:52 am
All I know is what my mother told me and retold me yesterday when she saw the Hannah story on the news Thursday.
I was born in Jan. 1955 and was adopted. At age 6 months I was given my DPT vaccination and this set off a chain of events.
My mom’s diary shows that she observed that within less than a day of the vaccination that I started crying a high pitch unearthly cry/scream. Also, I didn’t urinate for 3 days and my body gave off a strange odor of ‘old socks’. I ran a fever and did not want to eat or drink.
Our family doctor came over and told my mom that he had never seen such a reaction as mine and that he planned to write a paper about it (we don’t know if he ever did or not).
I have mild neurological deficits, a high IQ but do not know how to socialize and am a solitary person who has ‘odd’ abilities of memorization but not always understanding the meaning of what I can memorize. I though have great spatial relationship abilities but no clue about how to relate to others. Do I have Asperger’s ? WHo knows.
All I know is that I feel that the vaccination did something negative to me. Oh, I’m possibly part Native American and trial studies rarely include Natives in them !!!
Mtnmusic@Summermoon.com
Club 166
Mar 9, 2008 at 10:27 am
Cliff,
It’s obvious to me that autism was first introduced with the invention of baby food (Gerber started in 1928, took off in 1930’s), and was aggravated by the rise of CD players (or was it cell phones) in the 1980’s.
So there. You’re wrong.
Joe
Metaphors, Mitochondria, and the MMR
Mar 9, 2008 at 11:34 pm
[…] read this quote from Dr. Jon Poling, the father of Hannah Poling, in more than a few news stories and most recently in one today in the Philadelphia Inquirer. Dr. […]
Jorma J. Takala
Mar 10, 2008 at 3:07 am
The colors, or preservatives used in the vaccines are what caused the initial problems, but the continued used, or consumption of petroleum based coal tar, or wood based coal tar dyes, flavors and preservatives are what keeps Hannah in her autistic state.
Jon and Terri need to check out feingold.org and use the feingold program to eliminate all the toxic artificials from Hanna’s diet.
Go see the Feingold “Scientific Studies” section and take a gander at all the problems that the Feingold program addresses.
The thing that Feingold doesn’t know is that not only do they have the information on what helps all those problems, they actually uncovered the causes of those problems.
Coal tar dyes, invented in the 1830s by William Perkin.
In 1906 the FDA started to regulate the 80 some textile dyes and approved only 7, in 1976 Red dye #2 was banned because it caused cancer in Laboratory Test Animals.
ALL the artificial food dyes in use today are made from the same substance (coal tar) and the same way as Red Dye #2, what makes the dyes in use today any different than Red #2?
NOTHING!
In 2001 a Dr Tsuda concluded that Red dye #40 causes DNA damage to Lab Animals.
Ref: NIH PubMed Database PMID: 11294979 <—see for your self!
Americans have been suffering this DNA damage for over 100 years and as a result children like Hannah have a predisposition for problems with regard to consuming foods containing ANY of the Toxic Artificials.
The Vaccines put her over the top and the colors, flavors and preservatives keep here there.
The Feingold program has proven that it works.
I myself am proof that it really works
July 2006 I effectively put a stop to and ended 43 years worth of Migraine headaches, Add, ADHD, Severe Depression and behavioral problems, including but not limited to…. bipolar/manic and I also believe Aspergers Syndrome.
How many of you people who read this consume, or use everyday regular Margarine?
The artificial flavor used in ALL margarines give me the worst migraine heacaches and cause me to be very depressed and I even have tremors in my legs, some of you might know that as restless leg syndrome, How many of you have that?
You can stop it without taking any medications.
Any problems that you have with your children can be helped with Feingolds help, or simply some education in avoiding toxic artificials.
Part of Feingolds program addresses the fact that some fruits and veggies such as Grapes, Tomatoes, Apples, Cherries and some others contain narutally occuring aspirin in them.
This can cause Ataxia and many other serious problems contributing to the same things that many of you have witnessed in your own children.
I don’t claim to know it all, nor do I have any answers for what’s going on but I do know that it worked for me and my family (children, mother, siblings)
And I can honestly say that you will not be losing anything other than the poison that you eat everyday.
Petroleum based coal tar…. How can the FDA say that it’s ok for us to eat?
Coal tar… A known group one carcinogen, in the same catagory as Tobacco, asbestos, benzene and about 100 other Toxic chemicals.
M&Ms, Skittles, Kool Aid, Jello, Doritos, Gatorade and a huge list of products contain those colors and flavors.
When you, or your children consume these products, you are not only damaging your DNA but the DNA of your children and your childrens children!
If a child eats a bag of skittles, a bowl of jello and a “Grab” bag of Doritos, it’s the same as allowing them to smoke a pack, or two, or three of Cigarettes a day, matter of fact….. Just how much of this stuff equals a pack or two a day smoker for the level of toxins consumed by you or your child???
This next part might just piss you off really badly!
http://www.feingold.org/Research/dye.html#Kroes2002
Note:
Excerpts…
“This concept forms the scientific basis of the US Food and Drug Administration (FDA) ‘1995 Threshold of Regulation’ for indirect food additives. ”
The term “de minimis” means “a little bit can’t hurt.”
ILSI, a food industry group that used to be called the Nutrition Foundation, is composed of companies that make food additives, pesticides, snack foods, etc.
PMID: 12052639
PMID: 10717364
PMID: 15829616
A little bit can’t hurt you?
The FDA buys into this?
Do you buy this?
I certainly do NOT!
Are you aware about artificial sweetners such as Splenda, which was made by accident?
Yeah, A couple chemists were trying to make a pesticide and accidently made a sweetner and that’s supposed to be OK for you and I to eat?
How much more of this are WE THE PEOPLE going to take?
READ THE LABELS ON ALL THE PRODUCTS YOU BUY and AVOID ALL ARTIFICIAL FOOD ADDITIVES!
I used to love pepperoni, take a look at BHA and BHT, the preservatives used in MOST pepperoni on the market.
This lipophilic (fat-soluble) phenol is primarily used as an antioxidant food additive (E number E321) as well as in cosmetics, pharmaceuticals, jet fuels, rubber, petroleum products, and embalming fluid.
BHT=
http://en.wikipedia.org/wiki/Butylated_hydroxytoluene
The National Institutes of Health considers BHA reasonably anticipated to be a human carcinogen.
BHA=
http://en.wikipedia.org/wiki/Butylated_hydroxyanisole
I pray that some of you take this seriously and do NOT let your children eat this poison anymore!
Thank you for reading!
Jorma J. Takala
Gabe's Mom
Mar 10, 2008 at 11:49 pm
My son is going to be 4 next month. He was diagnosed with fairly high-functioning Autism at the age of 2. I’m a young mom and not sure whether my son was born with a genetic form of autism or if it was caused by an environmental factor (shots, dyes, etc.) but all that I know is I would do absolutely ANYTHING I possibly could to help my son. IF you’re on this website and you are not familiar with autism or don’t understand it first-hand, don’t be so judgmental of those who know and deal with it daily(the parents). If you don’t know or love someone who has it, you will NEVER, NEVER fully understand it whether you are a doctor, scientist, mailman, or whatever. Put yourself in my shoes, as a parent, and think about how important it would be to you to help your child no matter how far-fetched or crazy the answer was…… you would want to believe it so that maybe they would discover a cure and your innocent child could live a “normal life”. This is where the DAN! doctors debate comes in….maybe there ARE some who aren’t out to help, and maybe there are some really wonderful, knowledgable ones too…..it’s all a risk when it comes to Autism, because NO ONE KNOWS THE ANSWERS! Why bash people on here?
I’m not saying that I believe one way or the other about Hannah’s case and the vaccine issues, but I do know that my son and any children I have from now on will ONLY get ONE shot every 6 months to a year as I deem neccesary to assure that he/she can handle what is being injected in to them.
I do think there should be some sort of a discrimination against the age/size/weights of children. Not all children are in the same height and weight growth patterns for everything else in life, so why not make immunizations less generalized to fit each INDIVIDUAL person???
Kristina Chew, PhD
Mar 11, 2008 at 12:03 am
@Gabe’s Mom,
Thank you for writing here and I hope Gabe is doing well; is he in school, if I may ask? My son is 10 years and 10 months old. We did some biomedical treatments up until about the time that he was 5 and then decided that it would be best to focus on his education. And certainly that (education) needs to be individualized to each child’s needs—-Very best wishes.
Gabe's Mom
Mar 11, 2008 at 12:14 am
@ Kristina Chew,
Thank you for your quick response! Yes, he is in our local school system special education (pre-k) classes. I am up in the air when it comes to the bio-meds stuff right now. We have done a bit of researching on it but are not sure if it’s worth the money to try. He does a lot of therapies and PECS right now. How is your son progressing? I often wonder how Gabe will act when he gets older. We are very hopeful he will have speech soon, as he only says a few repetative things here and there.
I could not agree with you more about individualizing educational needs…that is such a huge help for children with autism and really the only proven thing to work thus far! Best wishes for you and your family as well!
Kristina Chew, PhD
Mar 11, 2008 at 2:22 am
@Gabe’s Mom,
Charlie has been doing really well. He did not have a lot of skills (no speech) when he started therapy and education at the age of just over 2. He did PECS and sign language and those helped his speech—he was diagnosed as being “classically” autistic, even severe. OT and looking at his sensory responses has meant more and more as he’s gotten older, and—though it is very hard—he does like to be in social settings with other kids. He just does not know what to do and needs help there especially.
Charlie had a lot of trouble—-it could be called a regression—when he was 7-9 (though those were also the years when he had some of his greatest triumphs—learning to bike and swim in the ocean). That involved some contentious times with our former school district and us ultimately moving. He’s definitely different, so to speak from other kids, and has lots of challenges—he is in a special ed classroom and will need services for all of his education—but he understands so much more.
Charlie really didn’t start to talk until he was 4-5. The sign language helped and we also did Verbal Behavior therapy. His speech is still minimal—1-3 word sentences—but he knows how to communicate a lot more than words can say, that’s for sure!
Hope things continue to progress for Gabe. Thank you so much for writing about him—-
Another Hidden Hoard?: Vaccine Court, Better Diagnosis, and Another Concession
Mar 11, 2008 at 2:27 am
[…] last week—last Thursday to be precise, when the parents of Hannah Poling Dr. Jon Poling and Terry Poling, held a news conference with their lawyer, Cliff Shoemaker, close […]
Discussing Autism » Blog Archive » Is a Payout Fair?
Mar 11, 2008 at 3:39 pm
[…] Autism Vox has a few questions that are really worth answering in order to answer the initial question…Is a payout really fair in this situation? : (1) Did vaccines injure Hannah Poling; (2) did vaccines cause her to become autistic; (3) how “rare” is Hannah’s “underlying metabolic condition”? Did You Enjoy this Post? Subscribe to Discussing Autism. It’s Free! « Back Home Posted in Advocacy, Autism in the News, Biomedical and Diet, Vaccines on March 11th, 2008 Link to this Entry Email This Entry […]
Gabe's Mom
Mar 12, 2008 at 1:02 am
@ Kristina–
That is wonderful that your son continues to do so well and it really gives me more hope that my son might progress to that level. IT’s nice to hear that I’m not the only one going through this and that there is hope that he could start to have words sometime soon! Thank you for sharing your experiences and information with me. It is SO greatly appreciated! God bless you and your family!
Further Questions about the Case of Hannah Poling
Mar 13, 2008 at 12:13 pm
[…] commentary on the case of Hannah Poling by pediatrician Rahul Parikh, M.D., on Salon (March 13). As Dr. Parikh clearly states, the […]
Deb K
Mar 15, 2008 at 12:25 am
THanks to the parents who took time to share some DPT storys. This is the one I think put my daughter over the edge.Some people just cant believe it!
Justthisguy
Mar 15, 2008 at 12:57 am
Well, I was born in 1951, and got the DPT shot, and the Smallpox scratch, but nothing else, I think. I got my Measles immunity the old-fashioned way, by getting sick with the Measles. Same with mumps and chicken pox. I reckon I get to look forward to shingles, if I live long enough.
Still and all, if my DPT shot is responsible for my borderline autism, I don’t mind, because, as I’ve written elsewhere, my autistic qualities are my best ones.
I don’t think the DPT shot had anything to do with my mental characteristics, of course.
Now, the scarlet fever..
Justthisguy
Mar 15, 2008 at 1:05 am
P.s. I’m much more worried about undead monkey viruses in the Poliomyelitis vaccines I had. I hope I don’t have to get my immune system suppressed for a transplant, or something.
(Dang, I hope I quit smoking soon enough!)
It’s Not the Vaccines
Mar 20, 2008 at 1:16 am
[…] usual suspects in Kirby’s book—to “release all relevant documents leading to the Poling concessions.” Just as he did in his Evidence of Harm – Mercury in Vaccines and the Autism […]
Denise
Mar 23, 2008 at 8:47 pm
I don’t believe it is vaccines at all. I went through 9 years of pure hell with my son. He alternated between slight symptoms of autism, ADD and just outright emotional disturbances.
To make a long story really, really short. It was just the food. Or to be more precise, the chemicals in the food. Especially food dyes.
We went totally organic 1.5 years ago and he has not had a single violent episode since. He has not been booted from school even once. I have not received even one phone call of misbehavior.
I do think there was some kind of permanent damage done though. He struggles in school and gets frustrated easily, especially with writing and math.
But I wonder if its just typical, normal child stuff now or maybe it’s because he missed so much of early coping skills and social skills building due to his violence and spaciness.
All I know is that within one-two weeks of removing chemicals from my son’s food, he was a new child.
I used to fear for his life. I used to fear he would end up hurting someone and living in prison. Now I just worry about him pulling up his grades.
S.L.
Mar 23, 2008 at 10:31 pm
Hi Denise,
That is wonderful news for your child. I have come to a point where I strongly feel there are children out there misdiagnosed with ADHD or even autism. They have allergies or other health issues, but the bothersome “symptoms” are similar to features found in ADHD etc. Often, behavioral issues may be the only sign of something going on. I think it’s important to make that distinction: there are children who suffer from allergies, which causes behavioral problems and then there are children with autism.
When Jenny McCarthy claimed her child began speaking and making so much progress within 2 weeks of dietary changes, I thought one of two things was going on:
1. she was lying or puffing up the truth, for the sake of selling her beliefs in the DAN protocol etc.
2. her child was nothing like my child, and he didn’t have autism OR at least not the same autism my child has
I’m not sure which is the case for Jenny, perhaps only time will tell. I don’t think you are lying, and I’m sure the changes you have seen in your son are real. I’m glad that dietary changes and identifying triggers (aka allergens) have made such tremendous change in your child. My sister has a sensitivity to milk. She was the perfect pupil in the morning, after lunch, however, she couldn’t sit still, was loud, etc. Her teacher had no idea what was going on. He and my mother spoke, and my mom realized she too saw my sister’s hyperactivity increase after milk. The solution: no more milk, and my sister was fine.
For my child, this is not the case. I actually have very solid proof of this. I breastfed until she was 4 months of age; I had to discontinue nursing as she had MSPI (milk soy protein intolerance). She was on Neocate until age 2, and then Neocate Jr. To this day, she still receives a form of Neocate when she is not eating or she is sick. We began solids around 7 months of age, it was organic cereals, and only a small serving each day (she has oral motor dysfunction). Then, very slowly we added some fruits and veggies–all organic and always very cautious about allergies. At 15 months of age, she had surgery for reflux and a feeding tube placed. At that point, she’d never consumed anything other than Neocate, water, limited amounts of organic cereal, fruits, veggies. She was found to be developmentally delayed at 6 months of age. Though her diet very limited and free of dyes, essentially GFCF, her developmental delays, sensory issues, apraxia, etc. continued and/or became more pronounced over time. Following surgery, she was unable to consume anything orally for over 4 weeks, so only Neocate & water was in her system. Again, even with this, we saw zero improvement. Slowly, she has added some foods to her diet. She still has a lot of oral motor problems, sensory issues, and feeding difficulties. She is very OCD about her foods, and the sensory aspect is very difficult when it comes to textures, smells, etc. At this point, we are happy she consumes anything, and it’s not possible for us to even attempt a GFCF diet with her. Honestly, with our experience, I have no reason to try it.
So, for us and for my daughter, I feel her autism is genetic, that she was so in my womb. I don’t think a diet would ever have such drastic ‘results.’ I do see, though, how if we hadn’t identified her milk intolerance, how this would contribute to more health & behavioral issues. I think there are plenty of families who go out and spend money on testing, special diets, etc. all for the hope of “curing” their child. It is my hope that doctors will look into allergies or other issues affecting a child’s behavior before diagnosing them with ADHD or PDD. Hopefully this will help make a distinction between those who truly are autistic and those who “recover” via diet (not autistic, but allergy sufferers).
Perhaps then, focus will be put on programs for teen and adult autistics, and society will begin accepting autistic individuals (and not questioning why parents like me are not trying every diet in the book, every supplement, etc. to “cure” my child). Thanks for sharing your personal experience and I hope things continue to go so well for your son.
Best of luck.
S.L.
Deb K
Mar 23, 2008 at 11:14 pm
Food sensitivitys are real.My daughter had candidia in her esoughagus for many years.I did eventually get to the bottom of this with a great gastro doc. She had many problems. Once nystatin was given she became so much better.She still has food sensitivitys but no more vomiting. She is in the spectrum of Autism.Many of these children are all toxic and this is why some really heal up well and do much better after changing diet. Very negitive and not to open minded as of late on this web site. I hope everyone realizes how toxic our enviroment is!Add too many antibiotics around imunization time and this is a deadly combo!
Kristina Chew, PhD
Mar 23, 2008 at 11:41 pm
Children with healthy diets do better in school, study suggests—–something of a no-brainer, perhaps?
S.L.
Mar 24, 2008 at 12:09 am
Hi DebK,
I’m not sure if your comments were directed toward me, but I’ll assume so. You’ll notice, I make the statement that allergies (and sensitivities) DO exist, and can mimic ADHD, autism, etc. My concern is children being wrongly diagnosed as such, when allergies are the real issue.
There will also be children (like my own) who indeed have allergies or sensitivities along with ADHD, autism, etc. These children MAY see some benefit from avoiding their triggers, but this child would still be identified as having autism or ADHD, even on a special diet.
The child who is “severely” autistic one day, begins GCFC, nystatin, etc. and within days or even weeks, suddenly appears to not have autism (or is suddenly verbal, has perfect eye-contact, etc.), I’m sorry, but that is not the case for people who have the same autism as my daughter. Again, perhaps some slight improvements would be noticed, mainly in behavior, if a child was no longer being exposed to an allergen. But, as many can attest to, these types of treatments don’t “recover” someone with classic autism. I really feel perhaps these kids have some other form of autism OR they were misdiagnosed. Perhaps they have allergies, plus ADHD or a learning disability or something–but most likely not autism.
I don’t think many autistics are toxic, as you claim. I think many physicians have seen their wallets get fatter by claiming this, and offering “treatments.” Parents of children who have autism (again, the autism my daughter has) will look to cases of kids who were “recovered” by DAN treatments, and feel sure their child will also be helped. Very often, they won’t be OR their child makes the same steady improvements they’d have made without the expensive treatments. The DAN docs continue to get richer, focus is not placed on the services my daughter & the thousands like her who won’t “recover” with diets or supplements, and where does that leave her when she is an adult?
I think some of us at times do feel very negative, as we hear the same argument time and time again, and see Kirby’s (and the like) words being worshipped and reverberated. Perhaps we are not always open-minded, simply because half of what we hear from those who oppose our views is utter quackery, the rest doesn’t pertain to us, is a blur of 1/2 truths, and/or is so full of vile that we have no choice but to look the other way. And all the while, our children, our autistic children continue to grow older, continue to need supports, and we as parents age. We wonder and worry what will be there for our children after they turn 21? Some of us know 100% our children will need a lot of supports, others (like myself) are simply unsure what our child will need–but we all want to know that something will be there for them. Right now, adult programs are few and far between, vocational programs are hard to come by, and the whole idea of “transition” in the majority of school districts is a joke. I’m glad that it seems you won’t have to worry about adult services for your child, that is great. But for the rest of us, who actually lose sleep at night over that, the fear is real and we have passion to no end for changing society and making the world a more welcoming place for our children (who in the blink of an eye will be adults).
S.L.
Mar 24, 2008 at 12:32 am
Kristina,
Great study–wow, I’m glad they spent money on that one! They should have just asked my mom who never let us leave the house without a healthy breakfast!! :)
Denise
Mar 24, 2008 at 12:47 am
Please see my website, http://www.add-witchhunt.com for more information. I am not a doctor. I cannot even claim that EVERY child will be cured by removing chemicals from their foods. Some children have REAL diseases, but many do not. Yet they are being given narcotics, mind altering drugs to treat a malnutrition problem! Then these kids either kill themselves or go into schools and kill other kids while on these drugs.
My son was diagnosed with all sorts of horrible mental diseases but yet, he has none. They wanted to give him electric shock therapy!!!!!….for what turned out to be an allergy to chemicals.
He is practically perfect now.
All I am saying is don’t believe the first thing you are told by doctors. Before giving your child drugs, perhaps suggest to your doctor that you’d like to try correcting problems by natural means, through food and supplements. If after two weeks you don’t see an improvement, what have you lost? A little bit of more expensive food.
But what if it works? What have you gained? Your child. Your life. Like I did.
I would also like to point out that my 14 yr old daughter has been DXd with asthma since she was about 2 yrs old. This past 1.5 years, since going organic, she has not had even ONE asthma attack.
What else might we CURE through clean food, food that God had given us and we ruined?
Denise
Mar 24, 2008 at 12:56 am
just out of curiosity, has anyone ever read the list of ingredients on some of the big brand name baby formulas?
chemicals that i cant even pronounce. they are poisoning them straight from the cradle.
Kristina Chew, PhD
Mar 24, 2008 at 8:27 am
Charlie never had any formula—-I nursed him for 13 months. thanks for the website link!
Sarah